Our beautiful boy, Liam was taken off the vent at 7:30pm last night, (the 25th of February), he passed away this morning (the 26th of February) at 10:40am. He is free of AT & reuniting w family in heaven today. There are no words that can truly express how we all feel this morning. Grateful to have had such an amazing soul as an integral part of this family for the last 19 years. Grateful for the outpouring of love we've felt from all of you. Grateful for the memories we each hold of Liam. And devastated by the loss of our sweet baby Liam. There is a piece of our hearts that is no longer with us & we feel its loss keenly. Walk, run, fly free our Liam. We love you so much, thank you for choosing our family as your forever family. We learned so much from you. Your smile, laugh, wit, heart, & hugs are greatly missed sweet boy. We love you now & forever. ❤️ Mom & Dad. PS. In honor of Rare Disease Day this Sunday the 28th of February please consider donating to the A