Jesmyluk

Liam's final message,  I Love You *Warning*  The following is not for those who cannot handle grief &/or raw emotions & does contain a few swear words.  February 2, 2021 This year just gets harder & harder.  For the first time in 5+ years, Liam & I are once again in the hospital.  After the New Year, Liam started having a harder time breathing & he was choking more easily when he swallowed.  We talked with his pulmonologist who was worried about infection so he prescribed a 6-day Z-pack.  He also asked us to up the breathing treatments to every 4 hours to help clear secretions & to keep him informed on Liam's progress.  He seemed to get better, had fewer secretions but he was still choking easily when drinking & eating.  We started virtual speech therapy, tried thickeners, & other tools to help him choke less but nothing seemed to work consistently. Both myself & the physical therapist noticed he was starting to breathe harder & faster as

Our beautiful boy, Liam was taken off the vent at 7:30pm last night, (the 25th of February), he passed away this morning (the 26th of February) at 10:40am. He is free of AT & reuniting w family in heaven today. There are no words that can truly express how we all feel this morning. Grateful to have had such an amazing soul as an integral part of this family for the last 19 years. Grateful for the outpouring of love we've felt from all of you. Grateful for the memories we each hold of Liam. And devastated by the loss of our sweet baby Liam. There is a piece of our hearts that is no longer with us & we feel its loss keenly. Walk, run, fly free our Liam. We love you so much, thank you for choosing our family as your forever family. We learned so much from you. Your smile, laugh, wit, heart, & hugs are greatly missed sweet boy. We love you now & forever. ❤️ Mom & Dad. PS. In honor of Rare Disease Day this Sunday the 28th of February please consider donating to the A

Photo found on the web is from Atlanta Journal-Constitution  I hope they don't mind I'm using it in this post.   Okay, I admit it, I have been pretty angry the last couple of months.  Not with my immediate family, or with life in general. Don't get me wrong 2020 was an exhausting, trying year but I haven't been depressed, I promise.  Just fed up with all the lies & deliberate misinformation coming from the White House, the Trump Administration,  his GOP supporters, & the millions of manipulated & misled Trump supporters, in the general public, via social media. This includes members of our extended family & friends. I still do not understand the cult of Trump.  I do not understand why his followers treat him as if he is their savior. He's just a man.  And an incredibly bad man at that.  An excellent con-artist but that's it. And he was a terrible leader/example of the free world, democracy, & our republic.   Technically, intellectually, I get

  Who enjoyed saying goodbye to 2020 as much as I did?!?!  Who actually thinks anything is any different in 2021, so far? Yeah me either.  It is a nice thought though.  So from here on in this post will be happy! Do you hear me?!?!?  HAPPY!!!  (Big breath in ... & ... out) Now don't you feel better?  Pssst...work with me here, okay?  We rang out the old & in with the new very laid back this year.  Just CA, the kids & I.  And the dogs & cats of course.  Liam & I watched Doctor Who all night long so that we could be ready for the New Year's Day special episode.  Good times.  The kids played video games as did CA & of course we had our standard fare of 7 layer dip, chips, cheese & crackers & soda.  We could hear fireworks going off in the neighborhood by 11 & they continued until just after midnight.  As soon as we were done toasting in the new year we all went to bed.  We really know how to live it up, don't we?  Yesterday, we spent the day